Vacterl Visionaries Website
Terms of Use and Privacy Notice
Terms of Use
1. This website is provided by VACTERL Visionaries for information and peer support purposes only.
2. While some content has been reviewed by a qualified medical professional, it should not be considered medical advice. The information presented here is not a substitute for professional healthcare advice, diagnosis, or treatment.
3. At all times, you should seek the advice of a qualified healthcare professional regarding any questions or concerns about your health or medical condition. Never ignore, delay, or replace professional medical advice based on information found on this website.
4. If you are unsure about any aspect of your health or treatment, please consult a healthcare professional immediately.
5. By using our website you acknowledge that you are accessing information only and not professional medical healthcare advice. VACTERL Visionaries accepts no responsibility or liability for any loss or harm arising from reliance on the information provided on this website.
6. This website has been built and written in the United Kingdom, using British English (BrE). ​The British English version of this website should be considered the authoritative version.
We do not accept liability for the accuracy or completeness of any translations made by you or by third parties, whether using automated tools or other methods.
If you choose to rely on translated information, you should verify it carefully and consult a qualified healthcare professional before making any decisions about your health or treatment.
7. Where we have provided links to outside organisations we cannot accept responsibility for any information you may read, the absence of content, errors or omissions. Listing by us is not an endorsement of any kind.
8. If you would like us to remove a link to your website from the VACTERL Visionaries website, please email.
Privacy Notice
Contact details: info.vacterlvisionaries@gmail.com
How we collect, use and store your personal data
This notice explains how we collect, store and manage any personal data we obtain when you use this website. This does not apply to external websites accessed via links on this site.
Personal data:
Personal data means any information that can identify you, such as your name and email address.
We collect personal data in the form of names and email addresses when you:
Correspond with us via email
Why we use this information:
To respond to your messages.
Special category (sensitive) data:
In some cases, you may choose to share sensitive personal data (such as health information or other personal details).
Lawful basis for collecting and processing your data:
We process your personal data based on your consent. This consent will have been clearly given to us for a specific purpose by your use of our email address.
Your rights:
Under UK data protection law, you have the right to:
-
access the personal data we hold about you
-
request correction of inaccurate data
-
request deletion of your data
-
restrict or object to how your data is used
-
Data portability - to transfer your personal information to another organisation or to you.
You can exercise these rights by contacting us using our email address. We will respond as fast as is reasonably possible and within 30 days.
You have the right to lodge a complaint with the Information Commissioner’s Office (ICO).
Information Commissioner’s Office
Wycliffe House, Water Lane
Wilmslow, Cheshire. SK9 5AF
​
Helpline number: 0303 123 1113
Data security:
We take appropriate technical and organisational measures to protect your personal data from unauthorised access, loss or misuse.
Sharing your information:
We do not sell or share your personal data with third parties for marketing purposes.
However, we may share data where necessary:
-
to comply with legal obligations
-
with trusted service providers (e.g. website hosting and email hosting), who are required to keep your data secure.
How long we keep your data:
We will only retain your personal data for as long as necessary to respond to your email and for a period of 30 days afterwards.