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About Us
We are a small group of friends brought together by a shared interest and lived experience, working together to support, inform and connect with others on a similar journey.
Some of us are independently associated with other organisations, ERN eUROGEN, Max's Trust charity and TOFS charity, in roles such as volunteer, patient representative and Trustee.
Despite these individual roles, this website operates independently and is not affiliated with or endorsed by these organisations. Read our history here
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