Living with VACTERL Association
Many young people and adults living with VACTERL Association go on to lead full, meaningful, and rewarding lives. While the journey can involve ongoing challenges, it can also foster resilience, self-awareness, adaptability, and strength
Understanding your condition, recognising your needs, and accessing the right support can help you make informed choices about your health and future. Confidence grows through knowledge, connection, and feeling empowered to take an active role in your care.
No one should have to navigate these experiences alone. With support, understanding, and the opportunity to be heard, it is possible not only to manage the challenges of VACTERL Association, but to move forward with confidence, independence, and hope.
This page and the links are here to help you understand your condition, build confidence at your own pace and advocate for yourself.
More information can be found by:
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Reading the Patient Empowerment information, published by ERN uROGEN. A joint project by our members within VACTERL Association UK, TOFS charity and Maxs Trust charity. Use this link:
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Watching the video of our members presenting at the VACTERL Association UK Family Event Birmingham 2025 View using the YouTube button below.
DISCLAIMER:
By using our website you acknowledge that you are accessing information and peer support only and not professional medical healthcare advice.
If you are unsure about any aspect of your health or treatment, please consult a healthcare professional immediately.