What is VACTERL Association
Anorectal Malformation
What is Anorectal Malformation?
Anorectal Malformation is also known as Anal Atresia or Imperforate Anus.
It can often be shortened to ARM in medical literature.
This malformation affects between 60% to 90% of babies born with VACTERL Association. [₁]
How does this affect a baby?
In babies with ARM, the anus may not have formed properly.
It may be in the wrong position or may be absent altogether.[₂]
Associated Conditions
Anorectal Malformation may coexist with other abnormalities of the lower urinary tract / genital tract.
Adults born with ARM may face bowel control difficulties, emotional stress, and social isolation that comes from living with a condition few feel able to discuss.
Managing bowel function extends far beyond
physical symptoms. It encompasses emotional wellbeing, social participation, and practical day-to-day life.
Adults with ARM may also face sexual and reproductive health concerns, including fertility challenges and urogenital differences.
Delayed referrals to specialists, such as reproductive medicine, urogynecology, or andrology can increase emotional stress and postpone essential care.
Life Long Care
At its core is dignity; ensuring that adults feel respected, heard, and genuinely in control of their bodies and personal care.
N.B. descriptions of the Terms used here can be found in the Glossary section.
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If you are unsure about any aspect of your health or treatment, please consult a healthcare professional immediately.