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Intimacy and Reproductive Health in Adults Born with ARM

Understanding your bladder, bowel, and reproductive systems can help you feel more confident and in control of your  health. It’s completely normal to feel nervous about relationships, especially if you have concerns about your body or medical history. Worries about rejection, embarrassment, or sharing personal information can affect confidence and emotional wellbeing but support is available.

  • ARM does not make you less attractive or less worthy of love

  • You deserve to feel valued, accepted, and confident

  • Healthy relationships are built on trust, respect, and kindness, not a “perfect” body

  • You are in control of what you share and when, set boundaries and take your time.


Talking to someone you trust, such as a healthcare professional, counsellor, or support group, can help build confidence and reduce anxiety.

How ARM may affect the body

Nerve and muscle development:

The nerves that control bowel, bladder, and sexual function, and the muscles themselves, may develop differently in people with ARM. This can affect:

  • Sensation

  • Control

  • How the body responds to stimulation

Surgical Repair or Scar tissue

This can:

  • change how muscles move

  • cause tightness in the pelvic or genitial area

  • affect comfort during activities like toileting or sex

Pelvic structure

Differences in pelvic anatomy may influence:

  • bladder control

  • erections or vaginal function

  • ejaculation

Operations for ARM may affect:

  • Pelvic floor muscles

  • anal sphincter function

  • urogenital anatomy

These changes can sometimes impact:

  • sexual function

  • comfort during intercourse

  • fertility

Bowel and bladder control

Some people with ARM may experience:

  • Faecal incontinence

  • constipation

  • urinary incontinence

These can affect confidence in intimate situations, but many people find ways to manage these symptoms effectively with medical support.

Pain or sensory changes

Scar tissue or pelvic muscle differences can sometimes make intimacy uncomfortable. If this happens, it’s important to speak to a healthcare professional as support and treatments are available.

Emotional and social aspects

Body Image and Self-Esteem
Scars, a stoma, or functional differences can affect how you feel about your body.
These feelings are valid, and support can help build confidence.

Anxiety about disclosure

It’s common to feel worried about telling a partner. Remember:

  • You are in control of what you share

  • You can choose the right time

  • Honest communication can strengthen trust and intimacy

Fertility and reproductive health

Some individuals with ARM may have differences in reproductive anatomy and may experience fertility challenges.

This is not limited to any one gender as both males and females can be  affected. If fertility is a concern, a specialist can provide guidance and discuss options.

Support Options

Counselling or therapy can help with:

  • Anxiety

  • Confidence

  • Relationship concerns

  • Sexual wellbeing

Further information may be found here:

Max’s Trust A UK charity providing support, information, and community for adults, children,
and families affected by anorectal malformations. https://www.maxtrust.org/


Sexual Support – ARM and Hirschsprung’s Disease
Provides information and support regarding relationships, sexuality, and intimacy.

https://sexuality-arm-hd.com/

​

ERN eUROGEN-Anorectal Malformation Patient Journey. https://eurogen-ern.eu/wp-content/uploads/2024/10/ERN-eUROGEN-Patient-Journey-for-ARM-2024-v-2024-10-28.pdf

DISCLAIMER:

By using our website you acknowledge that you are accessing information and peer support only and not professional medical healthcare advice. 

If you are unsure about any aspect of your health or treatment, please consult a healthcare professional immediately.

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